NEWS THAT MATTERS

Community campaign gets

Trikafta onto the PBS

People who suffer from cystic fibrosis will be able to access the vital medication, Trikafta, from April 1, after the Federal Health Minister announced that the Federal Government will place the drug onto the Pharmaceutical Benefits Scheme (PBS).

(L-R): Jess Ragusa, Labor Candidate for Robertson, Dr. Gordon Reid and Member for Gosford, Liesl Tesch.

29 March 2022

 

LABOR Candidate for Robertson, Dr. Gordon Reid, welcomed this decision and commended the extraordinary work that local Coastie, Jess Ragusa, has done on behalf of cystic fibrosis sufferers in achieving this.

 

“I am beyond pleased by the announcement that Trikafta will be accessible to CF sufferers from April 1 and that they will not have to fork out exorbitant amounts of money each month to purchase the medication,” Dr. Reid said.

 

“I was so impressed by the passion and drive Jess had when I met with her. She discussed how Trikafta had completely changed her life but noted a profound financial burden on her family. I was more than willing to lend my support to the online petition to get Trikafta onto the PBS.

 

“It’s disappointing that the Government took so long to make this decision and all the while, thousands of people living with the condition had to re-mortgage their homes or take out loans to cover the cost of the medication.

 

“Thousands of people from the Central Coast and around Australia signed the online petition, which called on the Federal Government to expedite the process to get Trikafta onto the PBS. The original goal was to get approximately 35,000 signatures but the campaign was able to get well past the 35,000-signature threshold. Thank you to every person who signed the petition – this outcome would not have been possible without the community’s support.”

 

Member for Gosford, Ms. Liesl Tesch MP has also welcomed the announcement.

 

“I welcome this decision by the Federal Government, despite its drawn-out process and the suffering they caused by delaying this result,” she said.

 

“I also wanted to highlight Jess Ragusa who has spearheaded this campaign with the force and determination of an Olympic champion.

 

“Thanks to Jess’ strong advocacy and her unwavering pursuit of Minister Hunt and Scott Morrison to make a commitment, many suffers of cystic fibrosis will not have to experience severe financial stress and hardship.

 

“Jess’ actions should be recognised as a significant contribution to the cystic fibrosis community – I hope to see much more from this empowering young woman who puts flaky-politicians on notice.”

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